International Guide to Movement Disorder Patient Advocacy Groups and Foundations
Australia
Australian Huntington Disease Association (Inc.) WA
Contact: Ms Meredith Doyle
The Niche, Centre for Neurological Support, 11 Aberdare Road
Nedlands, WA 6009 Australia
TEL: (08) 9346 7599
FAX: (08) 9346 7597
E-mail: ahda@cnswa.com
Web Site: http://www.ahda.asn.au
Australian Huntington's Disease Association (NSW) Inc.
Contact: Australian Huntington's Disease Association (NSW) Inc.
POST BOX 580
5006 NORTH ADELAIDE, SA Australia
TEL: (61) 82-8361 8933
FAX: (61) 82-8361 8949
E-mail: hda@visp.com.au
Web Site: http://www.ahda.asn.au
Austria
Öestereichische Huntington Hilfe
Hasnerstrasse 88/23
Vienna 1160 Austria
TEL: (43) 149 291 53
E-mail: ch.stockinger@utanet.at
Belgium
Huntington Liga
Krijkelberg 1
Bierbeek B 3360 Belgium
TEL: (32) 1645 27 59
FAX: (32) 1645 27 60
E-mail: socialedienst@huntingtonliga.be
Web Site: http://www.huntingtonliga.be
Ligue Huntington Francophone Belge
4b, Montagne Ste Walburge
Liege 4000 Belgium
TEL: (32) 4 225 87 33
FAX: (32) 4 225 87 33
E-mail: info@huntington.be
Web Site: http://www.huntington.be
Brazil
Associacao Brazil Huntington
Rua Das Camelias 38, Jardim Imperial
Atibaia, SP 12940-000 Brazil
TEL: (55) 11 484 2199
FAX: (55) 11 484 2199
E-mail: info@abh.org.br
Web Site: http://www.abh.org.br
Uniao dos Parentes e Amigos dos Doentes de Huntington (UPADH)
Contact: Janaina Miranda
QE 32 conj. N cs. 25 - Guara II
Brasilia - DF 71065-141 BRAZIL
TEL: (55) 61-244 1505
FAX: (55) 61-244 1505
Web Site: http://www.upadh.associacao.net
Canada
Huntington Society of Canada
151 Fredrick Street, Suite 400
Kitchener, Ontario N2H 2M2 Canada
TEL: (519) 749-7063
FAX: (519) 749-8965
E-mail: info@hsc-ca.org
Web Site: http://www.hsc-ca.org
Huntington Society of Quebec
2300 BOULEVARD RENÉ LÉVESQUE O
Montreal, Quebec H3H 2R5 Canada
FAX: (514) 937 0082
Czech Republic
Spolecnost Pro Pomoc Pri Huntingtonove Chorobe
Contact: Dr. Jana Zidovska
Dolni Brezany 153
Prague-West 25241 Czech Republic
TEL: (42) 224 90 4261
FAX: (42) 229 49 05
Denmark
Landsforeningen Mod Huntington's Chorea, LHC
Danish Huntington Patients' Association
Contact: Merete Lüttichau
Havnøvej 3
Havnø, Hadsund 9560 Denmark
TEL: (45) 9857 5323
FAX: (45) 9857 3496
E-mail: Merete.Luttichau@image.dk
Web Site: http://www.mmm.uni-c.dk/lhc
Finland
Huntington Association of Finland
The Family Federation of Finland/Vaestoliitto
Kalevankatu 16a
Helsinki 00101 Finland
TEL: (358) 0 6162 2246
FAX: (358) 0 645 018
E-mail: marjatta.sipponen@vaestoliitto.fi
France
Association Huntington France
42, 44 rue du Chateau des Rentiers
Paris 75013 France
TEL: (33) 1 5360 0879
FAX: (33) 1 5360 0899
Web Site: http://www.infobiogen.fr/agora/associations/huntington
Germany
Deutsche Huntington Hilfe
Contact: Georg Hirschler
Postfach 281251
Duisburg D47241 Germany
TEL: (49) 203 229 15
FAX: (49) 203 229 25
E-mail: dhh@dhh-ev.de
Web Site: http://www.dhh-ev.de
India
Huntington's Organization
Contact: Ms. Mano Singh
K 18/7 Dlf Qutub Enclave Phase II
Gurgaon, Haryana 35-66-77 India
TEL: (91) 124 356 677
FAX: (91) 124 351 945
International Association
International Huntington Association
Contact: Gerrit R. Dommerholt
Callunahof 8
Harfsen 7217 ST The Netherlands
TEL: (31) 573 431595
FAX: (31) 573 431719
E-mail: iha@huntington-assoc.com
Web Site: http://www.huntington-assoc.com
Ireland
Huntington's Disease Association of Ireland
Contact: Bernadette Moran
Carmichael Centre, N. Brunswick St.
Dublin 7 Ireland
TEL: (353) 187 213 03
FAX: (353) 187 357 37
E-mail: hdai@indigo.ie
Web Site: http://www.indigo.ie/~hdai
Israel
Israeli Huntington Disease Support Group
3 Lubezky St.
Gedera 70700 Israel
TEL: (972) 8 859 8573
Italy
Associazione Italiana Corea di Huntington
Contact: Gabriella Conte Marotta
Via L. Ariosto 19
Milano 20145 Italy
TEL: (39) 24801 5529
FAX: (39) 2239 4448
Web Site: http://www.freeweb.org/salute/aich/index.htm
Japan
Japan Huntington's Disease Network
Contact: Dr. Kaori Muto Yamamoto
The Health Care Science Institute, 3-2-12 5F Akasaka
Minato-Ku, Tokyo 107-0052 Japan
TEL: (81) 3 5563 1791
FAX: (81) 3 5563 1795
Malta
Maltese Huntington's Association
Contact: Prof. Alfred Cuschieri
Dept. of Anatomy, University of Malta
Msida MSD 06 Malta
TEL: (356) 329 022 80
FAX: (356) 319 527
Mexico
Asociacion Mexicana de la Enfermedad de Huntington A.C.
San Carlos #51, San Angel Inn
San Carlos DF CP 01060 Mexico
TEL: (52) 5 550 02 11
FAX: (52) 5 550 76 26
New Zealand
Huntington's Disease Association
Contact: Judith Baker
PO Box 78, Cust
North Canterbury, Cust 2500 GL New Zealand
TEL: (64) 3 3125 612
FAX: (64) 4 3485 442
Web Site: http://www.voyager.co.nz/~huntnz/
Northern Ireland
Huntington's Disease Assoc. of N. Ireland
Contact: Dept. of Medical Genetics
Floor A. West Podium Extension, Tower Block, Belfast City Hospit
Belfast BT9 7AB Northern Ireland
TEL: (44) 28 90 263 555
FAX: (44) 28 90 236 911
Norway
Landsforeningen for Huntington's Sykdom
Contact: Sigrun Rosenlund
Postbox 103
Oppegard N 1415 Norway
TEL: (47) 66 992477
FAX: (47) 66 993431
Pakistan
Huntington Disease Care & Cure Society of Pakistan
Contact: Dr. Asif Kahn
2 Sawati Gate
Peshawar Cantt Pakistan
TEL: (92) 5212 75471
FAX: (92) 5212 77583
Portugal
Assiciacao Portuguesa de Doentes de Huntington
Portuguese Huntington Association
Contact: Mrs. Ursula-Anna Kleibrink
Rua Dr. Afonso Costa, 32
Alvor-Portimao P - 8500-016 Portugal
TEL: (351) 282 459447
FAX: (351) 82 459447
E-mail: hd.ass.port@mail.telepac.pt
Web Site: http://www.apdh.4t.com
Russia
Huntington Association of Russia
Contact: Inst. of Neurology, AC Science
Volokolamskoye Shosse 80
Moscow 123367 Russia
TEL: (795) 490 2103/490 2039
FAX: (795) 490 2210
E-mail: nnikolskaya@hotmail.com
Slovakia
Spolecnost Pre Pomoc Pri Huntindonoveg Chorobe V Slovenskej
Slovakian Huntington Society
Republike Oddelinie Lekarskej Genetiky
Banska Bystrica 97517 Slovakia
TEL: (42) 88 713 380
FAX: (42) 88 320 65
E-mail: mkva@grip.cis.upenn.edu
Slovenia
Huntington Association of Slovenia, i.e.
Contact: Mr. Bogomir Mursec
Ciglence, 9
Spodnji Duplek 2241 Slovenia
TEL: (386) 62 681 221
South Africa
South African Huntington Disease Association
P. O. Box 4640; Tyger Valley
Cape Town 7536 South Africa
TEL: (27) 21 9133403
FAX: (27) 21 9133403
E-mail: jschron@iafrica.com
Spain
Asociacion de Corea de Huntington Espanola (A.C.H.E.)
Contact: Asuncion Martinez
Servicio Neurologia, Fundacion Jimenez Diaz, Avda Reyes Catolico
Madrid 28040 Spain
TEL: (34) 91 544 9008
FAX: (34) 91 549 7381
E-mail: amartinez@fjd.es
Web Site: http://www.e-huntington.tripod.com
Asociación Madrileña de Huntington
Spanish Huntington's Association
Contact: Asunción Martínez
c/ Cervera 77, 4º derecha
Madrid, Madrid 28033 Spain
TEL: 34689463417
FAX: 345497700
E-mail: asun@euro-hd.net
Web Site: www.euro-hd.net
Associacio Catalana de Malalts de Huntington (ACMAH)
Hotel d'Entitats de la Pau, c/Pere Verges 1, Desp 7-1
Barcelona 08020 Spain
TEL: (34) 93 314 5657
FAX: (34) 93 314 5657
Sweden
Huntington Foreningen I Sverige
Contact: Mia Lundstrom
c/o NHR, Postbox 3284, Kungsgatan 32
Stockholm 10365 Sweden
TEL: (46) 8 677 7010
FAX: (46) 8 24 1315
E-mail: mia.lundstrom@nhr.se
Switzerland
Schweizerische Huntington Vereinigung
Swiss Huntington Association
Contact: David Moser
Bahnweg 4
Oberhasli CH 8156 Switzerland
TEL: (41) 1 885 19 41
FAX: (41) 1 885 19 44
E-mail: info@shv.ch
Web Site: http://www.shv.ch
The Netherlands
Vereniging Van Huntington
Postbox 30470
Den Haag 2500 GL The Netherlands
TEL: (31) 70 314 8888
FAX: (31) 70 314 8880
E-mail: info@huntington.nl
Web Site: http://www.huntington.nl
UK
The Huntington Society
Contact: Malcolm Pattman
1 Rose Lea Close, Hillam
Yorkshire LS25 5HJ UK
TEL: (44) 1924 280 062
FAX: (44) 1924 263 950
USA
Huntington Study Group
Contact: Leslie Briner
University Of Rochester, 1351 Mount Hope Ave, Suite 223
Rochester, NY 14620 US
Web Site: http://www.huntington-study-group.org
Huntington's Disease Society of America
Contact: Louise Vetter
505 Eighth Avenue Suite 902
New York, NY 10018 USA
TEL: (800) 345-HDSA / (212) 242-1968
FAX: (212) 239-3430
E-mail: hdsainfo@hdsa.org
Web Site: http://www.hdsa.org
This presentation provides a comprehensive listing of non-profit organizations around the world committed to facilitating accurate diagnosis and access to up-to-date care. These organizations have established support services for individuals with specific movement disorders and their families. Some have chapter affiliates, publish educational materials, raise funds and provide grant money for scientific research.
Attention all Executive Directors/Medical Directors, if you would like to be considered for possible inclusion in WE MOVE's International Guide to Movement Disorder Patient Advocacy Groups and Foundations, kindly complete the following form.
