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I would like to know what medications other people are using. My doctor wants me to go to physical therapy to strengthen my legs, but I have found that the more muscle tone that I have the more spasms that I have. What are your thoughts on that? I use Zanaflex at night, but my legs are still kicking the life out of my poor husband all night long. I would like to find contact with others with this annoying problem. PA IceDrop@aol.com
posted
Take a look at the "support groups" post. Ziggy has a link to a website where posters with the same condition as you could help you out.
Posts: | Registered: Jan 2005
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posted
Hi, This is my first time on the line, and I couldn't agree with you more. For years I went through therapy trying to stay loose (home exercises, at the gym exercises, streching, all to no avail. After a period I stopped, I would go only so long and find they did no good. They actually made me worse, not to mention I couldn't build any tone in my legs. It was a hard decision, but I finally gave in to medication. I am now taking 15mg/day Methadone(5years) for pain and Chrones, Valium 6mg/day (3years) for spasticity,Tizanidine 8mg/day (4years) for spasticity, Qualaquin 324mg (4years) at bedtime for cramps. Still don't sleep long, but my wife isn't losing as much sleep as she used to.
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Hello, this is my first time on. I spastic paraplegia,or hereditary... My neuro has me on 5mg of Valium 3 times a day. What has worked for me is taking 1/2 tab once a day in am and early afternoon, then at night 1 take 2 5mg. It seems to help me sleep better and not want to straighten out everytime I rollover. I also do streching and floor exercises. I would like to see more improvement, but I have also had this since 2000. I am still having a hard time figuring out where or how this came from.The only thing that keeps me going is to say everyday "It could be worse" Janisse Gass
Posts: 1 | From: Cary,NC | Registered: Mar 2009
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