posted
My 8yr. old son has also had numerous problems at school and I've sent in pamphlets about TS, etc. also. At conferences the teacher always tells us how bad his handwriting is and my husband and I just look at each other and say, "thank goodness he will probably be using a computer to write someday" or" he get's it honestly". We have also had a run in w/the social worker not "getting it" either and thinks it is a behavior problem. It was so hard in second grade and we all felt very alone, but third grade was better and I told my son that he will be a better person for having to go through all this and we love him no matter what! Also, we tell him that someday he will find a best friend(s) that will take you as you are. Some days my heart hurts so much for him and other days I truly know that he will really be something when he grows up. Hang in there!
Posts: 27 | Registered: Jan 2005
| IP: Logged
posted
Hi my duaghter was diagnosed with tourettes, adhd,seizure disorder and ocd when she was about 6, she is now 8. She is currently taking stratera, clonidine and depakote, which do help, but she still has problems. Most doctors tell me that I can relate her bahavior to tourettes. She has fits and hit herself as well. It very hard at times to understand that all these symptoms can be related. Recently she had some bloodwork done and her Dr requested her to be tested for streptoccus, I don't know if they have ever checked her for this before, but she recently was sick and her tic's got worse, so they tested her, it came back positive and her titer was 598 (I think that's what its called) well I was told that is extremely high, which caused to look into strep infections and tourettes, from what I have read there seems to be some relation. Does anyone know anything about this and the relation between the two?
Posts: 8 | From: california | Registered: Jul 2006
| IP: Logged
quote:Originally posted by kelly35: Hi, just found this web site, wich is great. My son is 9 years old. was diagnosed at age 7 with tourettes,this year he was also diagnosed with OCD. He is taking clonidine at night to help him sleep. and topomax every 12 hours to control his tics,wich works very well. I have never known anyone with tourettes or who has a child with tourettes. My son has started to become very agitated very easily. I find myself wondering where my sweet loving child has gone. Could his anger outbursts be caused by meds? Or could there be another tourettes related diagnosis just around the corner? Also I am having problems with his school. They haven't had other students with tourettes and his teacher simply does'nt get it. I have provided her with packets of info. And still I get letter after letter regarding his handwriting wich is almost non readable. How do you deal with this? I would appreciate any advice I can get. Thank-You
I have extremely severe Tourette Syndrome myself. The violent outbursts are related to low serotonin levels, I believe. Violent criminals have been shown to have low serotonin levels. Also, I sometimes get agitated or angry very easily and I have found that SSRI (Selective Serotonin Re-uptake Inhibitor) medicines are very effective in reducing this and the tics themselves. These drugs work by increasing serotonin levels. I recommend that you tell your doctor that you'd like to try an SSRI Examples are Prozac, Paxil, Zoloft, Celexa, Luvox, etc. I currently take Celexa and Luvox together (maximum dosage of each. Actually it is unknown whether taking 2 SSRIs at once is safe, but I'm desperate.) Well, I hope that was helpful.
posted
you can tell your mom about this website, or ask her to go to tourettes association website, and start your conversation from there. You must talk to her about your symptoms, she is the only person who can get you the medical help you need. these symptoms are uncontrollable and you are not to blame for them.
Posts: 29 | From: tampa,fl | Registered: Apr 2006
| IP: Logged
posted
I can sympathyze with your situation, my son was just diagnosed late last year, he`s 11..We DID NOT put him on any meds due to his tics were not that severe at that time, but were still waxing and waning..And really still are to this day... I would have a very strong suspicion it is the meds causing your problems, one of the reasons we decided against them is all the negative effects, I investigated them thoroughly and we decided to handle it with diet. I found a wonderful book on how to control tics with Diet, and it has helped, but his tics still come and go but not as bad at times. However your situation could be such that the tics were so strong it only mad sense to give meds, and we may get to that piont as well..I hope not..I`ve read that if you take them off the meds it can all stop completely, or could get worse..
Posts: 5 | From: Indiana | Registered: Jul 2006
| IP: Logged
posted
LOOKS LIKE NO ONE HAS POSTED ANYTHING LATELY BUT HAVE BEEN ENJOYING READING ABOUT OTHERS' SITUATIONS. MY SON IS 6 YRS OLD AND HAS JUST BEEN DIAGNOSED WITH TOURETTES. HE HAD A VERY DIFFICULT KINDERGARTEN YEAR WITH A TEACHER THAT WOULD NOT "HEAR" WHAT I WAS TELLING HER ABOUT HIS TICS AND IMPULSES. HE CONTINUED TO GET BAD MARKS BEHAVIORALLY, DESPITE MY REQUEST TO HAVE THE SCHOOL COUNSELOR OBSERVE HIM AND MAKE RECOMMENDATIONS. HE'S IN FIRST GRADE THIS YEAR AND CONTINUES TO HAVE BEHAVIORAL DIFFICULTIES THAT ARE GETTING HIM IN TROUBLE. I DON'T THINK MY SON'S IMPULSES ARE EVEN THAT NOTICEABLE BUT OTHER KIDS ARE COMPLAINING ABOUT SUCH THINGS AS HIM NOT KEEPING HIS HANDS TO HIMSELF, WHICH IS OBVIOUSLY NOT ACCEPTABLE. SO I GOT A REFERRAL TO A NEUROLOGIST AND GOT THE DIAGNOSIS. MY SON ALSO HAS RAGE OUTBURSTS AND HAS DIFFICULTY CONTROLLING HIMSELF WHEN HE BECOMES ANGRY, WHICH IS OFTEN. HE HITS, THROWS THINGS, AND BREAKS THINGS, THEN DEMANDS THAT I FIX THEM OR REPLACE THEM!! HE ALSO HAS DAYTIME AND NIGHTTIME ENEURESIS (INCONTINENCE) AND WILL BE HAVING A SLEEP STUDY DONE SOON. NOT SURE IF THIS IS RELATED TO THE TS OR NOT. THE NEUROLOGIST SUGGESTED TRYING VITAMIN B6 AS IT HAS A CALMING AFFECT ON THE BRAIN. IF THIS IS NOT HELPFUL, HE MAY PRESCRIBE LEXAPRO. DOES ANYONE HAVE ANY EXPERIENCE WITH A CHILD WHO IS PRESCRIBED LEXAPRO? I WANT MEDS TO BE AS A LAST RESORT ONLY. I MYSELF TAKE ZOLOFT FOR DEPRESSION AND AM NOT AGAINST PEOPLE USING MEDICATION WHEN IT IS JUSTIFIED. I JUST HAVE RESERVATIONS ABOUT SUCH A YOUNG CHILD BEING ON MEDS. THANKS FOR ANY COMMENTS. I KNOW THIS IS THE BEGINNING OF A LONG ROAD AHEAD. HOPEFULLY MY SON WILL OUTGROW HIS SYMPTOMS DURING ADOLESCENCE!
Posts: 1 | Registered: Oct 2009
| IP: Logged
Printer-friendly view of this topic