This is Rainn and do I have good news for all my friends and members of We Move. I AM MAKING PROGRESS ON KICKING CBD IN THE BUTT. As most of you who know me, I have had my ups and downs with this HORRIBLE killer disease, and many times I just wanted to give up, but with the encouragement I received from Linda, Maxy Alicia, Claire, Suzy Q, Sonia, and so many others, I NEVER gave up. I was ALWAYS exercising, exercising, exercising, always, exercising. I actually tortured my body exercising. Then one day a young lady, after reading several of my posts, contacted me and informed me her husband, was and still is, suffering from CBD but he was making steps forward and actually improving. She gave his success to improving to Vitamin B-12 therapy. I asked my doctors about the Vitamin B-12 therapy, and none of these GREAT neurologist, neuro surgeons, neuro scientists, etc, wanted to discuss such a stupid. idiotic, nonsense of a subject. My family doctor of many many years, who also was my friend, wouldnt help me much either. I contacted the young lady, (we will call her Linda), who was the one telling me her husband was inproving, and she told me of a lady who wrote a book of Vitamin B12. Her name is Sally Pacholok an RN, and along with her husband, Jeffrey J Stuart, D.O., after years of researching B12, wrote a book titled..."Could It Be B12? An Epedemic of Misdiagnoses." I myself had researched every item I could on CBD, and just didnt believe everything I was reading, realizing very quickly there wasnt much to learn of CBD, except that it is very rare, not much known about it, that it was a fatal disease and after great suffering for some time, it finally killed you.
Every time I read it was terminal and no cure was known, I would think back to Linda Jean and of the many times she told me her husband was improving from B12 therapy....I would tell myself that is what I needed to do, but first.......I order the book Linda told me of. After reading the book..."Could it be B12? An Epedemic of Misdiagnoses", I had a B12 level drawn on me. It showed I was low normm but the doctors low norm was a lot higher than what Sallys book stated. After convincing my family doctor to at least glance through the book I bought written by Sally, he finally said he would help me. After two or three shots of B12 along with taking 2000mcg of sublingual Methyl B12 everyday, I began noticing improvement. Then once again I had a major illness hit me, didnt take shots or B12 vitamins for about two months and started getting worse again. Due to my major illness, doctor refused to give me B12 shot until I was over my illness so I started taking the JARROW Brand , 5000mcg of sublingual Methyl B12 daily, and I started improving, even without the shots. I have found this daily dose does at least as good without the shot, if not better. It may not affect everyone the same, but beyond a shadow of a doubt, I believe if I had known my body was deficient of B12 several years ago, and had started taking large daily doses of sublingual B12 then....that CBD would have never hurt me. I was so happy with my improvements that I ordered some more of Sallys books and had them drop shipped to some of my friends here at we move and even some of my friends on the other side of the world, and when they get done with them, they can pass them on to some of their friends who are suffering. That way, many many people can benefit from the vast research and knowlege of B12 the book shares with us. I cannot guarantee it will help you, but I know what it is doing for me. Who would believe that from the lack of Vitamin B12, a person could actually die, or even as I and many others have done, and that is suffering for many years. ALL BECAUSE DOCTORS AND PROFESSIONALS OF THE MEDICAL FIELD wont pay any attention to the EXPERTS who have already researched and proven the point that Misdiagnoses of B12 can and will kill you. If I were younger and knew about B12 what I know now, I would sue every self centered medical professional who misdiagnosed me, all because they wish to remain ignorant on the good that can be done with Vitamin B12, and the neurological disasters that can come from the lack of it. And I GUARANTEE I would win every law suit. It may be also that medical professionals can not make any money off of us by telling us all we need is an inexpensive test run to check our B12 level, and if that is the problem, it can usually be cured by $10 or $15 worth of B12 a month.............But they dont do that.......NO WAY.........What they tell us is.........You have a very rare neurolocical disorder that is causing your brain to deteriorate and degenerate so we will have to run a bunch of tests to determine which way to treat you, and they run many tests, send you home, call you back for more tests, and basically continue to do this until we die. Think of all the money the doctors and their friends they send us to see, make off of us this way.
If you would like to see how far I have come, just go to all my postings, they will tell you what I have done, what all was prescribed, the determination and perseverance I forced my brain to enforce upon me. You have to remain dedicated to exercise, exercise, exercise.
Now that I am back on my B12 therapy, I have made an appointment for this coming Monday to check myself into a hospital "Rehabilitation Ward" who are going to provide me with eight days worth of PHYSICAL THERAPY, OCCUPATIONAL THERAPY, AND SPEECH THERAPY. This way I can build my muscles back up so my body will be able to take the strain of the exercise routine I will be enforcing on it on a daily basis.
When I get home from the hospital I will let you all know how it helped me, or if it helped me at all.
Until later, May God Bless you and yours.. Rainn
P.S. If I can help anyone in any way, let me know
-------------------- May we all join together and help in finding cures for all movement disorders, and helping others in these trying times. God Bless The WORLD. Posts: 78 | From: Swamps of the HEARTLAND, just west of the GHETTOS, in THE GOOD OL USA | Registered: Nov 2006
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I am SO happy this treatment is working well for you!
I think i told you, after my mum read the book we asked for her B12 levels to be checked at her next hospital visit. We were told her B12 levels were normal at the time but i notice that you mention above, that maybe the doctors determination of "normal" is not necessarily ok? Am i understanding you right?
Best of luck with your physical, occupational and speech therapies next week, hope to hear from you when you get home.
Take care,
Claire. xx
Posts: 29 | From: England | Registered: Nov 2007
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Claire, I am leaving for my hosp[tal stay shortly, but wanted you to know this. All my tests to do with B12, according to the "charts and stats of the great physicians we are blessed with, and the information they have to go by." They all showed me normal to low norm....but I wasnt happy with their diagnosis. You CAN NOT get too much B12, so as my friend Linda says,..if you cant get too much.....why not take more? I will have eight days to re-search the book Sally wrote about B12 mis-diagnoses, and when my hospital stay is over, I will ask her if it is alright to give you her email address so you may contact her personally, and you can ask her whatever you wish to. Is that alright Claire?
Will let you know as soon as I return. Until later, good luck, God bless, and may He shower you with MANY blessings. Please keep me in your prayers. You all are always in my prayers.
Rainn
P.S. How is Sonia? I wrote her a short not a few days ago/
-------------------- May we all join together and help in finding cures for all movement disorders, and helping others in these trying times. God Bless The WORLD. Posts: 78 | From: Swamps of the HEARTLAND, just west of the GHETTOS, in THE GOOD OL USA | Registered: Nov 2006
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quote:Originally posted by Rainn: Claire, I am leaving for my hosp[tal stay shortly, but wanted you to know this. All my tests to do with B12, according to the "charts and stats of the great physicians we are blessed with, and the information they have to go by." They all showed me normal to low norm....but I wasnt happy with their diagnosis. You CAN NOT get too much B12, so as my friend Linda says,..if you cant get too much.....why not take more? I will have eight days to re-search the book Sally wrote about B12 mis-diagnoses, and when my hospital stay is over, I will ask her if it is alright to give you her email address so you may contact her personally, and you can ask her whatever you wish to. Is that alright Claire?
Will let you know as soon as I return. Until later, good luck, God bless, and may He shower you with MANY blessings. Please keep me in your prayers. You all are always in my prayers.
Rainn
P.S. How is Sonia? I wrote her a short not a few days ago/
-------------------- s martin Posts: 45 | From: salford england | Registered: Jun 2008
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hi rainn i am well thankyou going for my b12 injection this week. i have pernicious anaemia and all the symptoms come back when i am due an injection not very nice. if you are norm to low on b12 there is no harm in having b12 as it cannot be overdosed. i cannot absorb b12 orally so i have to have the shot as you yanks call it. so glad you seem much better and dont let the docs get away with it b12 does alot more good than harm. if you take large doses by tablet form 1000mg you can buy these online or at health food shops you should be okay. my sister claires mum is alot better on the stalevo seems to be lasting longer she was only going for a few hours on the sinemet and had to keep taking her dose early as she was getting immobile. well take care rainn all my love to you and yours noone can beat americans they are UK best pals hope barack obama wins. i think they should make you president of the USA. lots of love and dont stay in that hospital too long. we will miss you.from sonia claires aunt.
-------------------- s martin Posts: 45 | From: salford england | Registered: Jun 2008
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This is Rainn and do I have good news for all my friends and members of We Move. I AM MAKING PROGRESS ON KICKING CBD IN THE BUTT. As most of you who know me, I have had my ups and downs with this HORRIBLE killer disease, and many times I just wanted to give up, but with the encouragement I received from Linda, Maxy Alicia, Claire, Suzy Q, Sonia, and so many others, I NEVER gave up. I was ALWAYS exercising, exercising, exercising, always, exercising. I actually tortured my body exercising. Then one day a young lady, after reading several of my posts, contacted me and informed me her husband, was and still is, suffering from CBD but he was making steps forward and actually improving. She gave his success to improving to Vitamin B-12 therapy. I asked my doctors about the Vitamin B-12 therapy, and none of these GREAT neurologist, neuro surgeons, neuro scientists, etc, wanted to discuss such a stupid. idiotic, nonsense of a subject. My family doctor of many many years, who also was my friend, wouldnt help me much either. I contacted the young lady, (we will call her Linda), who was the one telling me her husband was inproving, and she told me of a lady who wrote a book of Vitamin B12. Her name is Sally Pacholok an RN, and along with her husband, Jeffrey J Stuart, D.O., after years of researching B12, wrote a book titled..."Could It Be B12? An Epedemic of Misdiagnoses." I myself had researched every item I could on CBD, and just didnt believe everything I was reading, realizing very quickly there wasnt much to learn of CBD, except that it is very rare, not much known about it, that it was a fatal disease and after great suffering for some time, it finally killed you.
Every time I read it was terminal and no cure was known, I would think back to Linda Jean and of the many times she told me her husband was improving from B12 therapy....I would tell myself that is what I needed to do, but first.......I order the book Linda told me of. After reading the book..."Could it be B12? An Epedemic of Misdiagnoses", I had a B12 level drawn on me. It showed I was low normm but the doctors low norm was a lot higher than what Sallys book stated. After convincing my family doctor to at least glance through the book I bought written by Sally, he finally said he would help me. After two or three shots of B12 along with taking 2000mcg of sublingual Methyl B12 everyday, I began noticing improvement. Then once again I had a major illness hit me, didnt take shots or B12 vitamins for about two months and started getting worse again. Due to my major illness, doctor refused to give me B12 shot until I was over my illness so I started taking the JARROW Brand , 5000mcg of sublingual Methyl B12 daily, and I started improving, even without the shots. I have found this daily dose does at least as good without the shot, if not better. It may not affect everyone the same, but beyond a shadow of a doubt, I believe if I had known my body was deficient of B12 several years ago, and had started taking large daily doses of sublingual B12 then....that CBD would have never hurt me. I was so happy with my improvements that I ordered some more of Sallys books and had them drop shipped to some of my friends here at we move and even some of my friends on the other side of the world, and when they get done with them, they can pass them on to some of their friends who are suffering. That way, many many people can benefit from the vast research and knowlege of B12 the book shares with us. I cannot guarantee it will help you, but I know what it is doing for me. Who would believe that from the lack of Vitamin B12, a person could actually die, or even as I and many others have done, and that is suffering for many years. ALL BECAUSE DOCTORS AND PROFESSIONALS OF THE MEDICAL FIELD wont pay any attention to the EXPERTS who have already researched and proven the point that Misdiagnoses of B12 can and will kill you. If I were younger and knew about B12 what I know now, I would sue every self centered medical professional who misdiagnosed me, all because they wish to remain ignorant on the good that can be done with Vitamin B12, and the neurological disasters that can come from the lack of it. And I GUARANTEE I would win every law suit. It may be also that medical professionals can not make any money off of us by telling us all we need is an inexpensive test run to check our B12 level, and if that is the problem, it can usually be cured by $10 or $15 worth of B12 a month.............But they dont do that.......NO WAY.........What they tell us is.........You have a very rare neurolocical disorder that is causing your brain to deteriorate and degenerate so we will have to run a bunch of tests to determine which way to treat you, and they run many tests, send you home, call you back for more tests, and basically continue to do this until we die. Think of all the money the doctors and their friends they send us to see, make off of us this way.
If you would like to see how far I have come, just go to all my postings, they will tell you what I have done, what all was prescribed, the determination and perseverance I forced my brain to enforce upon me. You have to remain dedicated to exercise, exercise, exercise.
Now that I am back on my B12 therapy, I have made an appointment for this coming Monday to check myself into a hospital "Rehabilitation Ward" who are going to provide me with eight days worth of PHYSICAL THERAPY, OCCUPATIONAL THERAPY, AND SPEECH THERAPY. This way I can build my muscles back up so my body will be able to take the strain of the exercise routine I will be enforcing on it on a daily basis.
When I get home from the hospital I will let you all know how it helped me, or if it helped me at all.
Until later, May God Bless you and yours.. Rainn
P.S. If I can help anyone in any way, let me know
Posts: 1 | From: California | Registered: Aug 2008
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hi rainn not heard from you for awhile. how did your stay in hospital go? please let me know if you are ok. hope to hear from you soon. lots of love soniaxxx
-------------------- s martin Posts: 45 | From: salford england | Registered: Jun 2008
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Hi Sonia, Maxey, Claire, Suzy Q, Linda Jean, Sally, Daddys Girl, artselegance,and everybody else, Just want you all to know I am alive, doing fairly well but I intend to do a whole lot better REAL SOON. Thank you all for the kind words, the many emails, ( i received emails from literally all over the world) and most of all your prayers. I love each and everyone of you all more than you will ever know. Every email I received from one of you made me feel like some really cared; no it didnt, it made me KNOW that someone cared, and like they just gave me a BIG, BIG hug. I never knew how important a hug could be until one of you all told me, and I believe it was Maxy, but at my extended stay in Re-habilitation Therapy, I found this to be very true. So lots of love and great great BIG hugs to all of you.
Claire,before I forget, what most doctors call normal, is not really normal. As Sally wrote in her book, take Japan for instance. There are very few Alzheimers cases in Japan because their normal range for serum B12 is 500 to 1300pg/ml and that is a lot higher than here in the States. Of all the books of Sallys that I bought you would think I would have one but I dont. I was going to look up the normal range for the U.S. If I can trust my memory, I believe our acceptable serum B12 level is 200 pg/ml, and that is extremly low I dont know about any other countries and their serum B12 levels, but I will google it and research it. I believe Japan has the higher levels of B12 requirements than any other country. Will tell you more about that later. I wish I had enough money to send everyone who suffers from a movement disorder, the book Sally wrote about B12. I believe the last count, I had bought 27 copies of the book, and had them drop shipped all over the world. I KNOW it would save so many lives and people may not have to suffer as they do if these HIGH AND MIGHTY, KNOW IT ALL AND WONT LISTEN TO ANYONE doctors, would read Sallys book, at least listen and try the B12 therapy. I know beyond a shadow of a doubt that B12 helps. Hey, I found out that my first symptons of CBD actually started as early as possibly 1997 or 1998......that is ten or eleven years ago, and I still live by myself, fix a lot of my own meals, bathe myself, am capable of taking care of my own home, drive four or five hundred miles by myself, to vist children and grand children, and GREAT grand children. And I am able to do this only because of everyones prayers, the very demanding and tortureous physical exercises I force myself to endure on a daily basis, and have been doing for several years. And GUESS WHAT? Today I heard on our local T.V. news that they have found that people with Parkinsons disease and Parkinsons like symptons actually improve speech, balance, mobility, and more, through exercising. They more or less exercise all day long, and for several hours a day, it is strenuous exercising. If you all remember in most of my postings for the past few years, all I talked about was, exercising, exercising, exercising, and now they have found thats about the only help for our disorder. I think I am getting ahead of my thoughts and need to slow down. There is just so much I need to tell everyone about my last EXPEIRMENT, and you will realize also..........Sally IS right. If our B12 levels are low, and remain that way for a period of time, it is possible, and very probable, that we can and will, most likely, suffer from a neurological disorder, and possibly, even death. We stand about a 95% chance of at least, because we are diagnosed with a movement disorder, or whatever the doctors wish to call it, of having to suffer from a crippleing, gruesome, and very painful, TERMINAL ILLNESS, all because these "GREATER THAN THOU" doctors, are to proud to think someone knows more than they do, and wont even listen to us when we mention, "Could it be caused by a B12 defeciency, and maybe; just maybe doctor, could you have possibly mis-diagnosed me?" If only we could force our government to listen to our pleas, maybe they would realize that B12 defeciency can be critical and even terminal. I have thought about bringing a class action law suit against some doctors, just to make the headlines and focus attention to mis-diagnosis of B12 and the pain and suffering we must go through, and even dying, because some doctors think they know it all and are too stupid, too ignorant, and too self centered, and because they didnt think of it first, to listen to someone who knows it works...mainly Sally and her husband. I know for a fact it works. Heres how I know B12 works. I have had my share of ups and downs with my so called CBD. At first I just accepted all the things the doctor and specialists were telling me. And that was that I had a very very rare neurological disorder they knew nothing about, there was no cure, no medications to help fight against it, as it progressed, it made our muscles and parts of my brain deteriorate and degenerate, it was very painful in the end, causing a great deal of suffering, and it WAS terminal. After a person hears all that B.S. he kind of feels like...gosh, the doctors say I dont have a chance and this disease will consume me in a few years and death is the only thing I have to look forward to. That is the only diagnoses I ever received. DEATH, DEATH, certain to meet DOCTOR DEATH IN A FEW SHORT YEARS. I laid around for a while, feeling sorry for myself, having the, "WHY ME LORD" pity partys, accepted my death sentence, and more or less just laid around waiting to die. Then when I took one of my many many falls, and broke my spleen in three places and spent almost two weeks in a Trauma Center because of it and actually dying twice, but ended up surviving and I figured the Lord was telling me something. I have always been a survivor and was always able to adapt to any situation, a man full of determination and perseverance. A man who in any situation, NEVER before in his life just laid down and gave up... AND I WAS GIVING UP NOW? No way in HELL(pardon the cuss word). I finally pulled my head out of my rear end and faced my situation head on, and trusting my Lord to lead the way. And lead me He did.
I dont remember how I ever came across this site, but it saved my life. I wrote my first post on here called...."How rare is rare?", and a young lady wrote me back telling me how her husband was diagnosed with the same thing...CBD, but he was getting B12 shots and taking B12 vitamins also. Guess what? He was getting better and today he is a whole lot better, all because of a lady named Sally Pacholok who wrote a book about B12. Because of Linda and Sally, I am still alive, because at that point and time in my life, I was actually feeling so sorry for myself and so depressed that I was thinking seriously about "checking out" of this old world. So now comes the part of my latest Re-hab Therapy. I, under the advice of my son who is an R.N., checked in to his Re-habilitation program to build my body to MAX, better shape than I had been in for years. My son said once I was toned and tough and in good shape, I wouldnt have much of a problem of staying that way, to which I agreed, but after some thinking, (sometimes when I think, I am dangerous or do something stupid). I spent almost two weeks, exercising every hour I was awake...I done strenuous exercises for at least ten hours a day. Eating protein foods like crazy. Doing Squats, bends, resistance training, push ups, weight lifting, elipticles, treadmills, total gyms, punching bags, you name it, I done it and you talk about a nice strong body....I had one.... but, not for long. For those of you who know me quite well, know I like to expeirment with my body.....the doctors wont try anything, but I will if I think it will benefit someone other than me. Here I came home with a body in excellent shape...my friends couldnt believe it was me. I was kind of proud of the way I looked. Reminded me of years ago. From the day I came home and up to about two weeks ago, I did NO, NONE, ZERO, ZILCH exercises, ate junk food,skipped meals, forced myself to sit around from about 4:00a.m. to at least 11:p.m. Lost weight, got weak and sure messed up a good body. I could barely walk, talk, hardly anyone could understand a word I was saying, I could barely move. Didnt take any of my medications. When I figured my body was in the worse shape I could get it in, gone from the best shape, to the worst, is when my expeirment kicked in. Now, by getting back on my sinemet, back to exercising almost every awakened hour, my elipticle, back to the weight training, my walking, riding my bicycle, (the old folks type...bought me a three wheeled bicycle), squats, bends, resistance training, every move I make, I make sure resistance is involved. I do have a speech therapist at least twice a week, and I am now talking better than I have in a long time, but I still have a ways to go with the speech. GUESS WHAT?? My body is almost back in shape, still have a ways to go to get THAT body back. I can walk, (but as before..with a walker), my balance is better, and this is just the beginning. Thanks again to my Guardian Angel, Limda Jean, and also to Sally Pacholok, the author of the book titled..........
Could It Be B12? An Epidemic of Misdiagnoses Sally M. Pacholok, R.N. Jeffrey J. Stuart, D.O.
I have personally bought 27 of these books and gave them away. All I asked people to do, was when they were done reading them,...dont put them on their book shelves because they do no one any good there. Pass them on to someone else. I have had them sent to England, Austrailia, Iraq, Iran, Afghanistan, Philippines, Germany, Europe, and other places I cant remember. I ordered mine on Amazon.com and I always bought new ones, but they do have used ones. I bet you all thought I was done writing, or maybe wishing I were, but I havent told you how what I have done was possible. It was all made possible through the prayers for me by all of my friends, my Guardian Angel, Linda, and she making me aware of the book on B12, and also for her introducing me to Sally Pacholok, the author of BEST BOOK I HAVE EVER READ ....and to Sally for making us aware of the importance that Vitamin B12 plays in our lives. And, last but not least, the manufacturers of Jarrow brand vitamins. I have been taking 5000mcg of Jarrow brand Methyl B12 on a daily basis for two weeks, and will continue this dosage for one more week, then I may drop down to 5000mcg of Jarrow brand Methyl B12 every other day, but if I must, I will adjust my dosage accordingly. The only reason I reccomend Jarrow brand is because I tried two other brands and they didnt seem to be doing what I thought they should, so I ordered Jarrow brand and almost immediatedly could tell a difference.
I also took up boxing, golf, hit the driving range almost daily, bowling, play baseball, and Maxy, I saved this just for you. You better get ready young lady. Bet you cant guess what else I play. Yep, you are right! I took up TENNIS. Not to bad at it either and it has been years and years since I have played tennis.
The Parkinsons patients I spoke of earlier said of all the things they do for exercising, they believe boxing helps the most. They dont do contact boxing, more so like shadow boxing. They do hit the speed bag and the BIG bag. But they say this is what helps most.
Some of you are probably wondering how I can box, bowl, play tennis and do the other sports I do when I can barely walk. I will let you in on a little secret and you can play too!! I went to the sporting store and bought me a Wii. I am serious when I tell you it helps tremendously. It has exercises you can do....been very beneficial to me. Every person should have a Wii . My very special friends, what this all amounts to in my opinion is this. If doctors do check your b12 level and it is out of whack, as long as they catch it before you are too old, it only takes a small amount of money to help, and hopefully, repair your body. I mean less than two or three hundred dollars, and you are set. But as long as the GREAT ALMIGHTY gODS OF THE AMA can diagnose us with an unknown, cant do nothing about it, very very rare disease, then they, and their counter parts, whom they refer us too, continually, and for the rest of our lives, make a very good living from us, sometimes costing our governments thousands and thousands and thousands of dollars, just off of one person. ALL BECAUSE SOME STUPID, GREEDY, IGNORANT, BETTER AND HOLIER THAN THOU DOCTOR......wouldnt run a B12 test. It should be a mandatory Federal law that everyone have a Urinary MMA (Methylmalonic Acid) Test along with the (HEY)Homocysteine test, once a year. This alone could save billions and billions of dollars and even some people diagnosed with MS, Parkinsons, Dementia, Alzheimers, and I could go on and on, but come to find out, (usually after it was to late), it wasnt a dreaded disease they were suffering from. NO! All it was....A B12 defeciency. If such a law were passed for the yearly B12 deficiency test, and a honest and thorough, yearly check up, to re-classify ALL people drawing disability payments, would literally save trillions and trillions of dollars. That will never happen tho. So, back to they HEY and the MMA. The Urinary MMA test is the most accurate to show a B12 deficiency and the HEY test will show if the Homocysteine (Hey)level is high, it could mean a B6, B12, or folate deficiency and even worse, the higher your HEY levels are, the more at risk you are for a heart disease. I have probably said too much already, but if I were younger and I was diagnosed with some ungodly disease or movement disorder, as I have been, I would get several more opinions, and if it were instead, a B12 deficiency, I would sue EVERYONE who had something to do with the mis-diagnoses. I have informed every one of my children, that what I have, could be, or could not be, hereditary, but should they be diagnosed as I have, immediatedly get checked for B12 deficiency, and if mis-diagnosed, for the sake of others who may suffer from a too late mis-diagnosis, sue EVERYONE involved with mis-diagnose. The old saying goes....the only way to hurt a doctor......hit him in the pocketbook.
Well my dear and special friends, I am certain I have many more enemies now, than before I wrote this posting, but I was always taught, not actually taught, more less had it beaten into me, to meet problems and troubles head on, go ahead and "nip it in the bud", and worry about it no longer. I guess that is kind of what I have done here. If someone reads this and is offended by it...that is your problem and not mine, as I never intend to offend anyone. Just suck it up and take it like a man. Once again, to all my friends, if I have any left, I luv you bunches, her is a BIG HUG and may God bless you abundantly, and watch over, you and yours. I pray for you every day.
Your friend I hope Rainn
-------------------- May we all join together and help in finding cures for all movement disorders, and helping others in these trying times. God Bless The WORLD. Posts: 78 | From: Swamps of the HEARTLAND, just west of the GHETTOS, in THE GOOD OL USA | Registered: Nov 2006
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hi rainn lovely to hear from you so glad you are getting better keep up with the exercise and b12. i totally agree with you about the b12 i went undiagnosed for 6 years and was hardly able to walk breathless fainting depression loss of feeling in hands and feet numbness in hands and feet unable to function properly could not even remember names of everyday items. if i wanted a pen for example i had to concentrate on finding it try to remember what a pen looked like and loads of other problems. this is because lack of b12 leaves you dehydrated and then causes memory problems confusion couldnt remember where i lived. since i have been getting b12 injections i feel much better my depression is lifted. we are having problems getting docs to recognise we need more frequent injections with p ernicious anaemia. i have only lasted 6 weeks and had to beg for another injection. the nurse thought i was going insane but i only needed an injection she only agreed when i told her i had complete loss of feeling in my hands and feet. i am in a support group called the pernicious anaemia society on the internet and it is PA week in UK this week. we have petitioned the government to raise awareness of this severely disabling condition. we have won a ruling for injections every 2 months instead of the current 3 monthly injections. you will gain alot of insight if look the PA society online some people are severley affected and we are treated worse than heroin addicts who get their injections more easily than people with genuine conditions. i beleive b12 deficiency is alot more common than docs admit. so i would love a celebrity popstar footballer or anyone in the media spotlight to have the condition so we can get this condition in the spotlight the only way we will get this terrible condition to be acknowledged. keep up the good fight and we will win. lots of love rainn and thankyou for raising awareness of b12 on this website. take care love soniaxxx
-------------------- s martin Posts: 45 | From: salford england | Registered: Jun 2008
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Hi to the gorgeous Rainn and Sonia and everybody else on our board.Do hope you are all o.k. I have been trying to send to a few of you this cheeky xmas email I received. Its quite good but my computer( and I know Rainn and I have had discussions about cyber space before) is not doing as well as it should be. I will get the problem sorted out sooner or later. So glad B12 is helping you both and by the way Rainn you will be happy to know that your lovely gift of the book on B12 you sent me is not wasted and sitting on a shelf. I have shown And lent it to many people of whom I think it could help. And you my dear make me laugh......you could never have any enemies. You have the heart and goodwill of an angel and I'm priveleged to know you and if you don't mind if I have any sucking in to do I will do it like a woman not a man. hA ha. (joke..... and at the moment there is more to suck in than normal. I think I should be getting back onto an exercise regime). By the way... Keep exercising. One day we might have that tennis match.You can be my partner and we'll take the young ones on. Ha HA .I've got a pretty good aim and not frightened of taking them out if you know what I mean.Oh dear.....that sounds awful doesn't it. Just too competetive for my own good.Anyway take care all of you . And have an egg nog on me this xmas. I plan on having several. Lots Of Love Maxy xxxx
Posts: 179 | From: N.S.W | Registered: Nov 2006
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