posted
Hello all! I am new to this forum. I have mild(?) head tremor (dystonia) and would like to share my experience in hopes of helping others with head tremor.
I have had head tremor for about 5 years. I developed it when I was in college. My head would shake if I get nervous, meet new people, if I think someone is looking at me, when I am infront of a large crowd, when I am startled ...and when I meet a hot chic. It is somewhat reduced if I put my hand on my chin or face and it does go away. When I went to see a neurologist, the dr put me on inderal. it helped with my hand shakes. the hands shakes were gone and i didn't feel drowsy @ 120mg per day. But I still had head tremors. The dr put me on klonopin @ 5 mg for usage whenever necessary. It removed it 100%. the only downside is that it doesn't last a whole day. The drug wears off after about 4 hrs or so. But if you haven't tried klonopin for your head tremor, I'd strongly recommend it. note that I take it only when I need it and not on a daily basis.
the dr didn't want me on klonopin on long term because it's kinda like alcohol where you build up tolerence and some people become addicted. So i went on a series of meds to reduce my head tremor. I tried everything and none have worked: lyrica, mysolin, topamax, and some anti seizure meds as well as anti depressant meds.
in summary, i control my head tremor with a combo of inderal and klonopin. they're gone if I use it. I hope this helps, let me know if you have any other questions.
-------------------- Head Shaker Posts: 4 | From: East Coast, US | Registered: Nov 2009
| IP: Logged
I am so pleased that you have been able to all but alleviate your tremor with meds. I have had my head tremor for 20+ plus years. I have tried most medications, apart from going down the anti-depressant route. The only med that reduces my tremor significantly is diazepam, clonazepam etc. Unfortunately as you say, these cannot be used long term due to dependancy. I use diazepam for hairdressing visits although my doctor is not keen on prescribing me this and seems to think all I need to do is some deep breathing exercises! Isnt it so frustrating when doctors refuse to believe that you are not shaking because you are nervous but that it is neurological! Keep us up to date on how you progress. It is great that you have been able to reduce your tremor.
Posts: 9 | From: Scotland | Registered: Oct 2009
| IP: Logged
Thank you for your reply. I have to go to a barber shop almost every 2 wks and I too had that problem. Klonopin sure does help. One other thing that helps (and by no means am I supporting it but just sharing) is alcohol. I think my doctor will try me on botox. I am a little bit hesitant on that right now. Is there anyone who has gone thru botox treatment?
-------------------- Head Shaker Posts: 4 | From: East Coast, US | Registered: Nov 2009
| IP: Logged
posted
I'm not being a smart ass here, just trying to help out some people who are new to this site. The forum has a 'search' feature that will bring up peoples comments on just about anything you may be looking for. For instance, when doing a search for 'botox' there are 57 comments mentioning it. Hope this doesn't stop anyone from talking about a subject they may need help with!
Bill
Posts: 278 | From: S W Pennsylvania | Registered: Oct 2006
| IP: Logged
posted
Just want to inject here that so far I've transferred 24 pages of my Tremor Tales (experiences with tremor) to http://tremortales.com Got 14 more pages to go. Posts: 368 | From: Wisconsin | Registered: Oct 2005
| IP: Logged
posted
I have had botox jabs in my neck. I suffered excruciating pain until the jabs wore off. They do partially immobilise your neck however, as my head tremor is severe, they just had a marginal effect on the shakes. Not enough for me to put up with the pain I experienced. Many ET sufferes benefit greatly from botox and each individuals experience differs. I was just unfortunate, but did try it again just in case. If you get offered botox then its worth trying.
Posts: 9 | From: Scotland | Registered: Oct 2009
| IP: Logged
![[Smile]](smile.gif)
Printer-friendly view of this topic