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My 78 yr old mother was diagnosed with PD 18 mos ago. Initially did very well with sinemet25/100 5x day but sxs returned over past few months. I thought her sinemet should be increased but her neurologist feels she should start stalevo. I would love to hear about your experiences with this med and any side effects, especailly in in older person. Thank you
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Started Stelevo 50 mg 3x day just 5 days ago, & noticed yesterday that on "off" times from meds - having dyskinesia & severe muscle ridigity. Taking max of Requip & starting Azilect sometime later this week. Should muscle rigidity and dyskinesia be so severe so soon? Hadn't noticed it so badly before. However, I've had terrible off times - that's the reason we're doing Stalevo. Stalevo is definitely working to curb off times! Worth everything to stop off times! Just curious about other side effects showing up so rapidly. Anyone have any similar stories? I'm 45, 2 yrs + PD (probably longer, just took time for diagnosis) - Man, it's hot in Texas!
Posts: 5 | Registered: Jan 2005
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NESM: I moved my post under yours - don't know why I didn't post here in the first place. You can read my week long experience. Stalevo is working wonders on the off episodes I had. But the muscle rigidity is new - seems rather soon, however, I've had some of that before, just not so severe - also dyskinesia and other muscle "myoclonic" jerking - (for 5+ years - probably start of neuro/ PD stuff). Anyway, your mom will probably do well on Stalevo, esp. w/ the entacapone, which is supposed to combine with carbidopa and enhance the benefits of L-dopa. I'm new to L-dopa treatments - but it's really working very well for me thus far! To me it's a wonder drug! Just don't like the times between. I'll pray for your mom - she must have a great kid to take care of her! WM - and it's still hot in TEXAS!
Posts: 5 | Registered: Jan 2005
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Thanks for responding, it's nice to hear from somebody who is taking this drug My mother is better with the stalevo, less off time but has been experiencing periodic upper abd pains which she never had before. Assume it's related to the stalevo,and we 're keeping alog to see if there is a pattern. Did you have any blood work such as liver function tests done before starting or during your treatment with stalevo. Do you still take sinemet as well ? She is taking both. Thanks for your help. Keep cool! Nina
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Sorry for the delay in reply - Just got back from taking our eldest to Tulsa to enroll as sophomore in university. She and wife drove with UHaul - I chose to fly. But my flight was on day that London had threats. Airports were crazy - so I delayed to FRIDAY. Just as bad. Carry a cane through airports so I can walk. I thought flying would be better, but it's not really. I'm more exhauasted, almost crawling to the gate - and every PD symptom is active by then! I may drive the 10 hours + next time!
I had no blood work done - not sure why. I've been on it [Stalevo]I guess for about a month now. This is first time with any L-dopa at all for me. The Stalevo has been like a miracle drug for me, though. I've never taken any sinemet before - just Requip at max dosage.
I did start Azilect this week in conjunction with Requip, Stalevo, and a bunch of "other stuff" I'm on. It's the new FDA approved PD drug from Israel. I think it makes me swell and a bit depressed, but not sure that's it yet. Maybe it's separation anxiety from my "baby" in Tulsa - I know my wife is having it. That's the love of mom and dad for their first born! I'm not sure our other two will be any easier...
By the way, it is cooler here in San Antonio than in Tulsa - Go figure! I'm praying for your mom - wm
Posts: 5 | Registered: Jan 2005
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My dad starts Stalevo in the morning. He's had essential tremors in his neck and voice since he was about 32 in his late 50's he got on meds that stopped his head from shaking as much, but then his hands started shaking worse. Now in his 70s the doctor told him he believes he also has Parkinson. He can't lift his head up to look at the ceiling, he drools, and his back and neck keep him awake nights. The doctor gave him sleeping pills that he said dry your mouth out so they may help with the drooling and after 30 days on those hes starting him on Stalevo for Parkinson. I read all the side effects to my mom that I found on the Internet (they don't have computer) for Stalevo and was hoping to get feed back on this website. I am a member here because, I inherited my dad's essential tremor,starting at age 36. Im not taking any meds because I am afraid the same thing that has happened to my dad will happen to me. My head doesn't shake as bad as his although it has progressively gotten worse and my voice started shaking a couple of years ago, I am 52 now. Anyway, Im rambling now, I just wanted some more input on the Stalevo for my dad.
I appreciated hearing your reply to the lady about her mom. Anybody else who has anymore feedback it would be most appreciated. I may not be posting this in the right place, maybe I need help with that too . I haven't posted anything in years, I mainly search for information from time to time, as I am not being treated I don't really have any advice.
I will say a prayer for all caregivers and sufferers, tonight with you two in mind.
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Day 6 on Stalevo, dad said if anything it feels like his shaking is getting a little worse, but he is not giving up. He is going to give it some more time. Will post again in a week.
Posts: 12 | From: Texas | Registered: Aug 2009
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quote:Originally posted by Traca: Day 6 on Stalevo, dad said if anything it feels like his shaking is getting a little worse, but he is not giving up. He is going to give it some more time. Will post again in a week.
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Day 12 on Stalevo, Dad has not had any of the side effects, but his shaking has not improved. He is going to give it more time ofcourse. Will post again in a couple of weeks for anybody who needs in sight on results of taking Stalevo (along with long time use of Inderol). We are all hoping this starts working!!
Posts: 12 | From: Texas | Registered: Aug 2009
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![[Smile]](smile.gif)
. I haven't posted anything in years, I mainly search for information from time to time, as I am not being treated I don't really have any advice. 
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