posted
Just wondering if anyone out there has tried BOTOX for treatment of spasticity?? Has it worked for anyone and are htere any side effects?
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posted
tried injections in my calf to solve toe curling as a result of a stroke...worked for about 2-3 weeks....going back for round 2 soon....have heard great things
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I had it once last year to my calf and toes and it did not work. I have mild spastic CP and had three prior foot surgeries for the effects of spasticity. I never got the intended relief from the injections for the spasms and the injections were supposed to prevent another surgery. Ended up having that surgery in Feb of this year to release my toes and relengthen a tendon.<IMG hspace=2 src="http://www.wemove.org/forumX/(bxrbgp55204tf3nh3w2po5f4)/grafica/icone/smiles/6.gif" align=absMiddle>
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posted
My son contracted transverse myelitis (immune system attacked his spinal cord in the c4-c5 range) at the age of 18 months and four years later spasticity and some paralysis in all four limbs. Spasticity in his legs and hips have been huge problems. We have been using botox shots in various locations every 4-6 months for about 2 and 1/2 years. He also takes oral baclofen and is up to 50mg per day. He has been ruled out for a baclofen pump at this time. He also gets p.t. 4-5 days per week.
The botox shots have really helped him with no side effects. The down side is that it is temporary. However, he will be having some lower extremity release surgeries this summer. I consider botox to be really integral in managing his spasticity.
I have mild spastic cp to rt arm and leg and medicare does not pay for botox yet they stopped paying before I even got started with botox.did anyone hear when they were going to aprove it again?<IMG hspace=2 src="http://www.wemove.org/forumX/(ffrc2m55ap242d2o1iy1k1e0)/grafica/icone/smiles/6.gif" align=absMiddle>.if anyone knows..please write on this site?
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quote:Originally posted by jeannemarieh: My son contracted transverse myelitis (immune system attacked his spinal cord in the c4-c5 range) at the age of 18 months and four years later spasticity and some paralysis in all four limbs. Spasticity in his legs and hips have been huge problems. We have been using botox shots in various locations every 4-6 months for about 2 and 1/2 years. He also takes oral baclofen and is up to 50mg per day. He has been ruled out for a baclofen pump at this time. He also gets p.t. 4-5 days per week.
The botox shots have really helped him with no side effects. The down side is that it is temporary. However, he will be having some lower extremity release surgeries this summer. I consider botox to be really integral in managing his spasticity.
posted
I also had c4-5 tranverse myelitis with paralysis of 3 limbs and ensuing spasticity. I have used botox for the past three years in my right arm with some improvement. The most significant improvements have been in my legs,due to aquatherapy.The water immediately reduces spasticity and allows excercises that were too painful to perform on land.Using closed chain tecniques,slowly adding resistance and eventually adding weights has allowed me to walk again and has drastically reduced the painful spasticity.
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posted
vciano, I receive botox every three months, seems to help but wears off after 2 months or so. Found pool therapy to be helpful as long as the temp was 91 deg. or better, anything in the low 80's would quickly set off my tone.
posted
Hi I have CP and Erbs Palsy in my Right Arm I'm considering Botox as an alternative to surgery have any of you had an increase in your range of motion? Thanks!
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posted
Have tried botox also, and like other comments at this site i have found it wears off and does not fully work, even when its first injected. i used it on the calves and hamstrings.
Posts: 3 | From: Huntington Beach, CA | Registered: Sep 2006
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posted
I am a 37 year old Ataxian with leg spasticity. I had very bad experiences with botox. Weakening one muscle group causes others to overcompensate, and made a difficult situation worse. This is my own personal experience. I would not recommend this procedure. I have my suspicions about clinics offerring this procedure. For example, where I was going, they always seemed to over order for my injections, and often times there'd be an older, seemingly healthy woman waiting for injections. The whole situation seemed fishy to me.
Posts: 1 | From: New York City | Registered: Sep 2006
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posted
That does sound fishy! I always wanted to ask if they had a wee bit extra for that spot between my eyes!
Botox worked the first time. Then less and less.... I am told that the old skool treatment is ethanol! Anyone ever heard of that? Evidently, it lasts longer (one year), but is considered (so said some doc) more dangerous (as per accidental paralysis) especially for those, like me, who receive the injections in the back.
The last injection made me ill, but I was developing Late Onset Insulin Dependent Diabetes (who knew? It was only all over the literature about SMS~) I've had weird "allergic" reactions since joining the ranks of the diabetic army, so I'd like to try botox again, now that I'm being treated for the diabetes.
Botox was never was really "miraculous." Even with additional stretching, my back never straightened out fully. It also didn't lessen the pain really, if at all.
The muscles in SMS under severe contraction are in my trunk, but they can not or will not shoot botox into my abdomen for fear of hitting an organ. Those needles are enormous, eh?
I sympathize with billrooster who got it on one side. It only made my stomach muscles contract even more. Can't have one without the other.
Some PR lady suggested I contact botox directly and be their poster girl or something for off-label/non-cosmetic injections. So if the botox people are sniffing around here, feel free to contact me. I'd like more injections, but I want a better doctor and better, more inclusive, care.
The doctors at Columbia claim it was their idea to do the first botox injection on me. Wrong. It was my friend's idea. They were skeptical. Now they give injections all the time. They must have seen success with other movement disorders as well.
And I would say, try everything first before surgery, ick.
Posts: 4 | From: New York | Registered: Sep 2006
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posted
My husband suffered from transverse myelitis in June of 2005, made a significant recovery only to have a brain injury in November 2005. Now he has shortened ham strings and a great deal of spasticity in his legs. He has not been able to stand since November. He is working hard to overcome the problem but the spasms are too bad to allow it. Does anyone thing botox injections would be helpful? Thanks, Kansas
Posts: 1 | From: Kansas | Registered: Oct 2006
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