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WE MOVE
204 West 84th Street
New York, NY 10024
E-mail: wemove@wemove.org
wemove.org • mdvu.org

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WE MOVE
Jerk legs!
Do your own research - be your own advocate! Doctors DO NOT know everything! Just going through this has taught me that and watching cable health shows. (Mystery Diagnosis alone will tell you to keep at it!)

– Jennie McLeod Kennedy

I was born with my feet outward (like Mary Poppins). I was given special shoes (not braces) to help correct the problem. This apparently is an early sign of Focal Dystonia (however, noone knew this in the 60's).

About three or four years ago, I noticed a jerk in my left leg (mainly in the thigh area) which would happen only sparodically. I was on an anti-depressant - Paxil at the time.

After changing to Zoloft just two years ago, I noticed the jerk more frequent. (Note: I had no idea at the time that meds could possibly cause this). I also noticed that sometimes while working at the computer my head would very gently shake. At night the left foot would jerk over and over and the thigh or at the same time.

This past year the jerking has moved into the abdomen (only when trying to rest). It is now in the right thigh area.

I have a clean Brain MRI with nothing being reported except small blood vessels. My neurologist says that these medications will not cause these problems. However, after being involved with We Move and doing my own research (just reading side effects from the manufacturing tells you), they can indeed cause the problem.

I am not taking any kind of medication because I do not like the side effects. I have very sensitive to anything. I am now on Lexapro (since a few months ago) in hopes it might get better. Wrong! I am going to try and wean myself off of it so I can see if there is a change.

My doctor has told me that it will not worsen, well, it has. So, I will go visit her again to see what we need to do. I had a paternal grandmother who had Parkinsons Disease.

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