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» WE MOVE Discussion Forum » Today's Active Topics

Total Active Topics: 19
Forum   Topic
Dyskinesias (Paroxysmal) Icon 1 Re: anyone clap their hands with episodes Jump to new posts by Jaffafangs (1)   

I sometimes tap on things, almost trying to 'channel' it away
Dyskinesias (Paroxysmal) Icon 1 Re: psychogenic diagnosis Jump to new posts by Jaffafangs (3)   

I agree with Twistergirl. I mean, Jeez Lizzy, what a dumb and insensitive thing for anyone to say, let alone someone who's supposed to try and help you. <Dark Mutterings>.
Dystonia Icon 1 Re: I do not want to live like this! Jump to new posts by Drevik (30)   

I am 39 and have had generalized dystonia for 5 years already. At times, it can be painful, when my jaw pops or I bite myself. I lose the ability to open my eyelids. I have problems breathing. I have...
Dystonia Icon 1 Re: jaw questions? Jump to new posts by Drevik (4)   

my jaw joint has been painfully popping lately
Dystonia Icon 1 Re: does hot sunny days make you worse Jump to new posts by Drevik (5)   

low blood sugar definitely makes it worse but I find my emotional states affects it more and I have not noticed a weather correlation.
Dystonia Icon 1 Re: IS ANYONE ELSE EXHAUSTED? AND MOODY? Jump to new posts by Drevik (5)   

I have had generalized dystonia for 5 years. I get extremely tired, when I leave my house as my twitching gets worse with stress, frusteration and generally being in public. I have compared leaving my...
Dystonia Icon 1 Re: anyone here got drug induced distonia from anti depressants Jump to new posts by Drevik (12)   

I have had generalized dystonia for 5 years from taking Risperdal for about 3-4 months. Everyone else noticed my twitching and breathing difficulties about a month before I was finally made aware of...
Dystonia Icon 1 Re: Difficulty chewing/loss of weight Jump to new posts by Drevik (1)   

I have had generalized dystonia for 5 years now. I have difficulty eating from time to time. I mostly bite myself (cheek, tongue, and on rare occasions fingers, when eating finger foods). My friend,...
Essential Tremor Icon 1 Re: Finally a DBS date Jump to new posts by sparky31 (11)   

Thanks for the tape tip Hugh that may be the snswer to my head shaking once in a while I have to really concentrate to make sure it stays steady. The last MRI at Western the tech didn't talk to me and...
Essential Tremor Icon 1 Re: I'm falling apart! Jump to new posts by Robyn9 (44)   

Hi DougUte&Mrs.(what would you do without her?) I was telling my mother about the possible Chrons and your tremors.She keeps up with pretty much.She wondered if you had ever taken any Accutane.It is...
Restless Legs Syndrome Icon 1 Re: Sinemet CR Jump to new posts by Bev1960 (28)   

Now my sleeping pattern has changed,I go to bed at 10pm and waking up at 12 midnight I take a 1 2mg of hydromorphine stay up till 1230 or 1pm go back to sleep wake up at 4 take a 1 tramacet stay up till...
Essential Tremor Icon 1 Re: It's only been two days but... Jump to new posts by dboots (3)   

Hmmm the beta blocker is prescribed because my heart is racing too often It is not prescibed as an anti depressant Live with it??? Live with what? Accept what?
Essential Tremor Icon 1 I'm falling apart Jump to new posts by Robyn9   

Dystonia Icon 1 Re: uncertain about symptoms Jump to new posts by kmhadw (5)   

I think it kind of sounds like dystonia, have you gotten a dagnosis yet
Dyskinesias (Paroxysmal) Icon 1 Re: Gastroparesis Jump to new posts by lizzymom368 (1)   

I have intestine problems too. Sometimes too fast, other times too slow. It is cyclical every month. I just pay attention and try to adjust my diet.
Dyskinesias (Paroxysmal) Icon 1 Re: Sick and Tired Jump to new posts by lizzymom368 (11)   

Laughter really is the best med. My fav. movie is "Better off Dead", an '80s classic. It will put lots of funny "ear worms" in your head. So when ever anyone asks for "2 dollars", I giggle inside. Works...
Dyskinesias (Paroxysmal) Icon 1 Re: Aura's Jump to new posts by Jaffafangs (2)   

Thanks-'deer caught in headlights' is pretty accurate from what I feel/ have been told.
Dyskinesias (Paroxysmal) Icon 1 Re: Finally I have a name for this thing! Jump to new posts by lizzymom368 (4)   

First give your self a hug. I was one of many who was told to "suck it up, walk it off". As far as I know there is no test. Your already heads and tails above most, you listened to your child! :)
Essential Tremor Icon 1 Re: My Mom Jump to new posts by dboots (2)   

Hi I am new here I am just a layperson, but it would seem to me that the Klonopin is triggering neurotransmitters to send a misfiring signal of the tremor But then on the other hand, it seems to be also...

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