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T. Weiss, It takes a while for the botox to effect S.T. and because there is so little research on our worlds, you may not notice the subtle changes that take place, in the process. I was so far advanced before I sought out relief, I was amazed by my 1st treatment. It was up and down from there.
Were you an athelete in your younger years?
-------------------- I search for the Cause, with the Hope for a Cure.. Posts: 34 | Registered: Oct 2007
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Hi I'm in New Zealand and was diagnosed with CD last year. Looking back I think it started about 10 years ago. I've undergone three lots of botox and now have less pulling to the left but am shaking more. Over the years I've had lots of neck and shoulder pain and problems, "putting my neck out" just by getting out of bed or the car. This is no longer a problem, but over the last year I've had a lot of hip and buttock pain. I don't have arthritis and xrays show nothing. I'm wondering if just being out of alignment can cause this. Does anyone else have this problem? I'm also faily tall and skinny with a long torso. Sorry posted this in the wrong place maybe - just getting used to forum technology!! Best wishes all
-------------------- Kiwimover Posts: 3 | From: New Zealand | Registered: May 2009
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I was diagnosed with CD in Sept. 2008. I tried baclofen, tzandine, Xanax, several antichlonergics, pain blocks, all to no avail. I have good days and then I have what I call flare-ups. Right now I am waiting for Botox and I take Skelaxin 800mg every 6 hours and Tylenol. This knocks the edge off the pain but does not completely get rid of it. I do not have abnormal head posture. I read that it takes about five years to know how bad CD will get. I have muscle twitches in my arms and legs. Will someone explain to me what I can expect? Does anyone have the same experience?
-------------------- Alison Smith Posts: 1 | From: Pontotoc, MS | Registered: Sep 2009
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I am "turning" sixty, having been diagnosed with CD a couple of yeas ago. Never took the med. route for fear of side effects. I went through 2 botox treatments which helped a bit for only a couple of weeks. My 3rd treatment was with more Botox, then I had no strenght in my neck, not even enough to hold my head up. If I would look down just a bit, my head would drop, feeling like it weighed a ton. I had to hold it back up with my hand. Needless to say, no more Botox for me, I'm living with the constant pulling, I can still function, and count my many other blessings! I could have been afflicted with a much worse condition. Denise
Posts: 3 | Registered: Apr 2009
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