International Guide to Movement Disorder Patient Advocacy Groups and Foundations

Choose a disorder Ataxia / Olivopontocerebellar atrophy Conditions associated with movement disorders - Neurotransmitter Diseases - Pediatric - Spastic Paraplegia - Mitochondrial Diseases - Lewy Body Dementia Corticobasal degeneration Dystonia - Blepharospasm - Spasmodic Dysphonia - Torticollis (cervical dystonia) Essential tremor - See Tremor Hereditary Spastic Paraplegia Huntington's disease Multiple system atrophy Myoclonus Parkinson's disease Progressive supranuclear palsy Restless legs syndrome Rett syndrome Spasticity - Brain/Head Injury - Cerebral Palsy - Multiple Sclerosis - Spinal Cord Injury - Stroke Tics / Tourette's syndrome Tremor Wilson disease

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UK

The Sarah Matheson Trust
Contact: Lee Potiphar , Pickering Unit
St. Mary's Hospital, Praed Street
London W2 1NY UK
TEL: (44) 207 8 861 520
FAX: (44) 207 8 861 540
E-mail: l.potiphar@imperial.ac.uk
Web Site: http://www.msaweb.co.uk

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USA

Society for PSP/Cure PSP+
11350 McCormick Road, Exec. Plaza III, Suite 906
Hunt Valley, MD 21031 USA
TEL: (410) 785-7004
FAX: (410) 785-7009
E-mail: SPSP@psp.org
Web Site: http://psp.org

The Shy-Drager Syndrome/Multiple System Atrophy Support Group
Contact: Don Summers
P.O. Box 279
Austin, Coupland, TX 78615 USA
TEL: (866) 737-4999
FAX: (512) 251-3315
E-mail: Don.Summers@shy-drager.org
Web Site: http://www.shy-drager.org/

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This presentation provides a comprehensive listing of non-profit organizations around the world committed to facilitating accurate diagnosis and access to up-to-date care. These organizations have established support services for individuals with specific movement disorders and their families. Some have chapter affiliates, publish educational materials, raise funds and provide grant money for scientific research.

Attention all Executive Directors/Medical Directors, if you would like to be considered for possible inclusion in WE MOVE's International Guide to Movement Disorder Patient Advocacy Groups and Foundations, kindly complete the following form.