International Guide to Movement Disorder Patient Advocacy Groups and Foundations

Choose a disorder Ataxia / Olivopontocerebellar atrophy Conditions associated with movement disorders - Neurotransmitter Diseases - Pediatric - Spastic Paraplegia - Mitochondrial Diseases - Lewy Body Dementia Dystonia - Blepharospasm - Spasmodic Dysphonia - Torticollis (cervical dystonia) Essential tremor - See Tremor Hereditary Spastic Paraplegia Huntington's disease Multiple system atrophy Myoclonus Parkinson's disease Progressive supranuclear palsy Restless legs syndrome Rett syndrome Spasticity - Brain/Head Injury - Cerebral Palsy - Multiple Sclerosis - Spinal Cord Injury - Stroke Tics / Tourette's syndrome Tremor Wilson disease

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The Netherlands

MSA and Parkinson's Plus Group
 E-mail: msa.ams.be@gmail.com
Web Site: http://www.msa-ams.be/

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UK

The Sarah Matheson Trust
Contact: Lee Potiphar , Pickering Unit
St. Mary's Hospital, Praed Street
London W2 1NY UK
TEL: (44) 207 8 861 520
FAX: (44) 207 8 861 540
E-mail: l.potiphar@imperial.ac.uk
Web Site: http://www.msaweb.co.uk

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USA

National Ataxia Foundation
Contact: Michael Parent
2600 Fernbrook Lane Suite 119
Minneapolis, MN 55447-4752 USA
TEL: 763-553-0020
FAX: 763-553-0167
E-mail: naf@ataxia.org
Web Site: www.ataxia.org

SDS/MSA Support Group
Shy-Drager/Multi System Atrophy
Contact: Vera James
8311 Brier Creek Parkway, Ste. 105-434
Raleigh, NC 27617 USA
TEL: (866) 737-5999
FAX: (512) 251-3315
E-mail: vjames@shy-drager.org
Web Site: http://www.shy-drager.org/

Alternate email jbiedenharn@shy-drager.org

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This presentation provides a comprehensive listing of non-profit organizations around the world committed to facilitating accurate diagnosis and access to up-to-date care. These organizations have established support services for individuals with specific movement disorders and their families. Some have chapter affiliates, publish educational materials, raise funds and provide grant money for scientific research.