International Guide to Movement Disorder Patient Advocacy Groups and Foundations
Argentina
Tourette Syndrome Association of Argentina
Contact: Stella Ortiz
Segurola 483, V.Sarmiento (1706)
Buenos Aires Argentina
Australia
Tourette Syndrome Association of Victoria
Contact: Judi Rosevear
The Nerve Centre, 54 Railway Road
Blackburn, Victoria 3152 Australia
TEL: 03 9845 2700
FAX: 03 9845 2777
E-mail: tourettes@mssociety.com.au
Web Site: www.tsavic.org.au
Tourette Syndrome Association of Victoria Inc.
Contact: Tim Morrissey
The Neurological Centre; 54 Railway Road
Blackburn, Victoria 3130 Australia
TEL: 61 03 9845 2700
FAX: 61 03 9845 2777
E-mail: tourettes@mssociety.org.au
Web Site: http://www.tsavic.org.au
Tourette's Syndrome Association of Australia, Inc.
Contact: Russel Oxford
PO Box 1173
Maroubra NSW 2035 Australia
TEL: 61 2 9382 3726
FAX: 61 2 9382 3764
E-mail: info@tourette.org.au
Web Site: http://www.tourette.org.au
TSA of Queensland
20 Balfour Street
Newfarm 4007 Australia
TEL: (61) 7 3358 4988
TSA of South Australia
23a King William Street
Unley 5061 Australia
TEL: (61) 8 8357 8909
FAX: (61) 8 8357 8876
E-mail: nrc@camtech.net.au
TSA of Victoria, Inc.
Contact: Tim Morrissey
34 Jackson Street
Toorak 3142 Australia
TEL: (61) 3 9828 7218
FAX: (61) 3 9826 9054
E-mail: tourettes@mssociety.com.au
Web Site: http://www.devolution.com.au/tourette
We aim to provide support and information for sufferers of TS and their families. We also include public awareness of TS and arrange community events.
Western Australia TS Organisation
320 Rokeby Road
Sabiaco 6008 Australia
TEL: (61) 9388 3486
FAX: (61) 9382 1149
Austria
Öestereichische Tourette Geselschaft
Contact: Maria Stamenkovic
Wien Universitat Hospital vor Psykiatrie, Wahringergutrel 18-20
Wien A 1090 Austria
TEL: (43)140 400 3526
FAX: (43) 140 400 3560
Belgium
Vlaamse Vereniging Gilles de la Tourette
Contact: Vera Casier Cassimon Jozet
Nauwelaertstraat 7
Wynegem 2210 Belgium
TEL: (32) 33 54 3669
FAX: (32) 35 53 6791
Brazil
Associaco de Pacientes com Sindrome de Tourette Tiques e transformos Obsessivo-compulsivo (ASTOC)
R. Bras Cardoso 201
Sao Paulo Brazil
TEL: (55) 11 822 0023
FAX: (55) 11 822 0023
Canada
Tourette Syndrome Foundation of Canada
Contact: Rosie Wartecker
206-194 Jarvis Street
Toronto, Ontario M5B 2B7 Canada
TEL: (416) 861-8398 or (800) 361-3120
FAX: (416) 861-2472
E-mail: tsfc@tourette.ca
Web Site: http://www.tourette.ca
Denmark
Dansk Tourette Forening
Contact: Kjeld Christensen
Søllerødvej 76
Holte DK 2840 Denmark
TEL: (45) 45 80 07 53
FAX: (45) 45 80 32 16
Web Site: http://www.tourette.dk
Finland
Suomen Tourette Yhdistys
Finnish Tourette Association
Contact: Mika Marjalaakso
E-mail: mika.marjalaakso@tourette.fi
Germany
Tourette-Gesellschaft Deutschland e.V.
Contact: Tourette Gesellschaft Deutschland e.V. - c/o Prof. Dr. A. Rothen
Von Siebold Str. 5
Gottingen 37015 Germany
TEL: (49) 551 396727
FAX: (49) 551 398120
E-mail: info@tourette.de
Web Site: http://www.tourette.de
Iceland
Tourette Samtokin a Islandi
Contact: Eliz. Magrusdottir
Postholf 3128
Reykjavik 123 Iceland
TEL: (354) 588 8581
FAX: (354) 551 4580
E-mail: emagn@islandia.is
International Association
Tourette Syndrome Global Awareness Program
Contact: Christian Melbye
Munkerudasen 33
Oslo N-1165 Norway
FAX: (47) 22 28 67 52
Web Site: http://www.intertourette.com
Ireland
Tourette Syndrome Association of Ireland
Contact: Una Finucane
29 Granville Road
Dun Laoghair, Dublin Ireland
TEL: (353) 1 623 0500
FAX: (353) 1 623 0500
Israel
TSA in Israel
Contact: Imber Anat
PO Box 6935
Rosh Ha-Ayin 48632 Israel
TEL:
E-mail: tsaisrael@gmail.com
Italy
Associazione Italiana Sindrome Tourette
Tourette Syndrome Association of Italy
Contact: Mauro Porta, MD
Policlinico San Marco; Corso Europa, 7
Bergamo-Zingonia 24040 Italy
TEL: (39) 035 886298
FAX: (39) 035 885789
New Zealand
TSA of New Zealand
Contact: Carol Bridle
146 Weymouth Road, Manurowa
South Auckland New Zealand
Norway
Norsk Tourette Forening
Contact: Tom A. Wulff, President
Brolandsveien 19 B
Oslo N-0980 Norway
TEL: (47) 2221 6506
FAX: (47) 2210 9921
Peru
Asociaocion Sindrome de Tourette del Peru
Contact: Luisa Fernanda L. Romana
Las Golondras no. 390
Lima 27 Peru
Poland
Polskie Stowarzyszenie Syndrom Tourette's
Contact: Ewa Boguszewska
c/o Osrodek Informacij TOPOS
38/40 ul.Dulga
Warsaw 00-238 Poland
TEL: (48) 22 831 22 12 (Tuesdays from 17:00 - 18:30hrs)
FAX: (48) 22 831 47 12
Spain
Asociacion Espanola para Tics y Tourette
Gran Via de les Corts Catalanes, 562 pral. 2a
Barcelona 08011 Spain
TEL: (34) 451 5550
Sweden
Svensk Tourette Forening
St Johannesgatan 28
Uppsala S 752 33 Sweden
TEL: (46) 18 56 09 04
FAX: (46) 18 56 09 01
Switzerland
Tourette Gesellschaft Schweiz Burozentrum
Gibraltarstrasse 34, Postfach 7147
600 Luzern 7 Switzerland
TEL: (41) 1 760 0265
The Netherlands
Stiching Gilles de la tourette
Post bus 925
Rhoon 3160 AC The Netherlands
TEL: (31) 0900-7766554
E-mail: info@tourette.nl
Web Site: http://www.tourette.nl
UK
Tourette Syndrome (UK) Association
Contact: Tourette Syndrome (UK) Association
PO Box 26149
Dunfermline KW12 9WT UK
TEL: (44) 845-458-1252
FAX: (44) 845-458-1252
E-mail: enquiries@tsa.org.uk
Web Site: http://www.tsa.org.uk
USA
Tourette Syndrome Association, Inc.
Contact: Sue Levi-Pearl or Heather Cowley
42-40 Bell Boulevard
Bayside, NY 11361 USA
TEL: (718) 224-2999 / (800) 237-0717
FAX: (718) 279-9596
E-mail: ts@tsa-usa.org
Web Site: http://tsa-usa.org
This presentation provides a comprehensive listing of non-profit organizations around the world committed to facilitating accurate diagnosis and access to up-to-date care. These organizations have established support services for individuals with specific movement disorders and their families. Some have chapter affiliates, publish educational materials, raise funds and provide grant money for scientific research.
