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WE MOVE

International Guide to Movement Disorder Patient Advocacy Groups and Foundations


Australia

Rett Syndrome Association of Australia
Contact: Bill Callaghan, President
GPO Box 3497
Melbourne, Victoria 3001 Australia
TEL: (61) 3 96157077
E-mail: rettaust@bigpond.com


Austria

Austrian Rett Syndrome Association
Contact: Irmgard Wenzel
Kaiser Josef-Strasse 3
Wolkersddorf A-2120 Austria
TEL: (43) 2245 5084
FAX: (43) 2245 5084 22
E-mail: info@rettsyndrom.at
Web Site: http://www.rettsyndrom.at


France

Association Francaise du Syndrome Rett
41, rue Roger Bodineau
Larcay 37270 France
TEL: (33) 2 47 48 05 62
FAX: (33) 2 47 05 76 99


International Association

International Rett Syndrome Foundation
Contact:
4600 Devitt Drive
Cincinnati, OH  45246 USA
TEL: (513) 874-3020
FAX: (513) 874-2520
E-mail:
Web Site: http://www.rettsyndrome.org

Rett Syndrome Research Trust
67 Under Cliff Road
Trumbull, CT 06611 USA
TEL: 203-445-0041
FAX: 203-445-9234
E-mail: Monica@rsrt.org
Web Site: http://www.rsrt.org


Japan

Japan Rett Syndrome Association
  Japan
TEL: (043) 238 8898
FAX: (043) 238 8903


Norway

Norwegian Rett Syndrome Association
Contact: Hanne Blom-Bakke
Apenesbakken 7
Horton 3183 Norway
TEL: (47) 3304 6546
E-mail: Haaso@online.no


UK

Rett Syndrome Association UK
Contact: Administration Manager
113 Friern Barnet Road
London N11 3EU UK
TEL: (44) 20 8361 5161
FAX: (44) 20 8368 6123
Web Site: http://www.rettsyndrome.org.uk


USA

International Rett Syndrome Foundation
Contact:
4600 Devitt Drive
Cincinnati, OH  45246 USA
TEL: (513) 874-3020
FAX: (513) 874-2520
E-mail:
Web Site: http://www.rettsyndrome.org

Rett Syndrome Research Trust
67 Under Cliff Road
Trumbull, CT 06611 USA
TEL: 203-445-0041
FAX: 203-445-9234
E-mail: Monica@rsrt.org
Web Site: http://www.rsrt.org


This presentation provides a comprehensive listing of non-profit organizations around the world committed to facilitating accurate diagnosis and access to up-to-date care. These organizations have established support services for individuals with specific movement disorders and their families. Some have chapter affiliates, publish educational materials, raise funds and provide grant money for scientific research.

Attention all Executive Directors/Medical Directors, if you would like to be considered for possible inclusion in WE MOVE's International Guide to Movement Disorder Patient Advocacy Groups and Foundations, kindly complete the following form.