International Guide to Movement Disorder Patient Advocacy Groups and Foundations
Argentina
Group Listing
Australia
Friedreich's Ataxia Association of New South Wales
Chisholm Street 31a
Turramurra 2074 Australia
TEL: (61) 2 94408233
Web Site: http://www.faa.org.au
Spino Cerebellar Ataxia Resources & Support (SCARS)
7 Robilliard Street
Mays Hill 2145 Australia
E-mail: michelle@bmu.net.au
Web Site: http://www.backmeup.net.au
Belgium
Association Belge de l'Ataxie de Friedreich et des autres Ataxies Hereditaires
Contact: Madeline Pelousse
Rue Longe 68
Bouffioulx B-6200 Belgium
TEL: (32) 71 50 42 48
FAX: (32) 71 50 42 48
Canada
Canadian Association for Familial Ataxias
3800 Radisson St., suit 110
Montreal, Quebec H1M 1X6 Canada
TEL: 514-321-8684
E-mail: ataxie@lacaf.org
Web Site: www.lacaf.org
European
Ataxia UK
10 Winchester House, Cranmer Road
Kennington Park, London SW26EJ UK
TEL: +44 (0)20 7582 1444
FAX: + 44 (0)20 7582 9444
E-mail: enquiries@ataxia.org.uk
Web Site: http://www.ataxia.org.uk
European Federation of Hereditary Ataxias
Contact: Dagmar Kroebel
Haagwindelaan 19
Overijse B-3090 Belgium
TEL: (32) 2 657 1510
FAX: (32) 2 657 6176
Web Site: http://www.euro-ataxia.org
Finland
Rare Neurological Disabilities Group
Suomen MS-Liitto - Finlands MS-Förbund
Seppalantie 90
Masku FIN-21251 Finland
TEL: (358) 2 4392111
FAX: (358) 2 4392133
Web Site: http://www.ms-liitto.fi
France
Association Strumpell-Lorrain
9 bis, rue Fabre
Besancon F-25000 France
TEL: (33) 3 81502391
FAX: (33) 3 81502391
E-mail: asl.spastic@wanadoo.fr
Web Site: http://www.afaf.ree.fr
Germany
Deutsche Heredo-Ataxie Gesellschaft Bundesverband e.v.
Haussmannstrasse 6
Stuttgart D-70188 Germany
TEL: (49) 711 2155114
FAX: (49) 711 2155214
Web Site: http://www.ataxie.de
Ireland
Friedrich's Ataxia Society of Ireland
Contact: Clare Creedon, San Martin
Mart Lane, San Martin
Dublin 18 Ireland
TEL: (353) 1289 47 88
Web Site: http://www.fasi.ie
Italy
Associazione Italiana per la lotta alle Sindromi Atassiche
Via Cattaneo 22
Magenta (MI) I-20013 Italy
TEL: (39) 2 9792271
Web Site: http://www.hosting.iol.it/aisa
The Netherlands
ADCA-Vereniging Nederland
Contact: Marco Meinders
Fazantenkamp 839
Maarssen NL-3607 EC The Netherlands
TEL: (31) 346 563913
FAX: (31) 346 580417
E-mail: ataxie@ataxie.nl
Web Site: http://www.ataxie.nl
UK
Ataxia UK
Contact: Ataxia UK
Lincoln House, 1-3 Brixton Road
London, London SW9 6DE UK
TEL: 020 7582 1444
FAX: 020 7582 9444
E-mail: office@ataxia.org.uk
Web Site: www.ataxia.org.uk
Ataxia UK
10 Winchester House, Cranmer Road
Kennington Park, London SW26EJ UK
TEL: +44 (0)20 7582 1444
FAX: + 44 (0)20 7582 9444
E-mail: enquiries@ataxia.org.uk
Web Site: http://www.ataxia.org.uk
USA
A-T Children's Project
Contact: Jennifer Thornton, Executive Director
668 S. Military Trail
Deerfield Beach, FL 33442 USA
TEL: (800) 5-HELP-A-T
E-mail: info@atcp.org
Web Site: http://www.atcp.org
Ataxia MJD Research Project, Inc.
Contact: Laura Denning
1425 Alvarado Avenue
Burlingame, CA 94010 USA
TEL: (650) 347-0362
Web Site: http://www.ataxiamjd.org
National Ataxia Foundation
Contact: Michael Parent
2600 Fernbrook Lane, Suite 119
Minneapolis, MN 55447-4752 USA
TEL: (763) 553-0020
FAX: (763) 553-0167
E-mail: naf@ataxia.org
Web Site: http://www.ataxia.org
This presentation provides a comprehensive listing of non-profit organizations around the world committed to facilitating accurate diagnosis and access to up-to-date care. These organizations have established support services for individuals with specific movement disorders and their families. Some have chapter affiliates, publish educational materials, raise funds and provide grant money for scientific research.
